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Just When You Think You’re Gaining Traction…

Just when you think you’re gaining traction, you find out it’s 95% likely that you’ll move.

To another state.

Into a smaller home.

And school is starting soon.

I still have plenty of posts planned for the future.  And if I can manage it, I’ll continue my putting up Throwback Thursday posts for new content for you (my readers) to peruse.  The nature of this change means that for the next two months, my attention has to be on getting my family ready for this move.  Transitions and change can be tricky for anyone, but especially kids on the Autism Spectrum.  We’ve already had one meltdown over this move.

Hang in there with me please.  I’ll try to post as I am able.   My plan to declutter my home this fall has been moved up in timeline and condensed.  I still have my scouting responsibilities, and I’m trying to wrap up my commitments and responsibilities with everything else we do.

Oh, and BabyGirl got the common childhood illness of pinworms.  So now I have to change and wash bedding on a daily basis as well as sanitize my home.  Joy oh joy.

Wish me luck!

 

 

Handmade Disney Themed T-shirts

Time for a Mega Crafting post.  I never did post this one on my old blog.  After my software for my professional vinyl cutter was woefully out-of-date and I would have to purchase new software for quite a lot, I decided to purchase a Silhouette Cameo.  I loved that it could do paper, fabric and freezer paper in addition to vinyl.  My family had a Disney trip coming up and I decided to make more t-shirts for the kids.  I found some great freezer paper tutorials here and here.

First I asked the kids what they would like on their shirts.  Lawboy asked for Lego Anakin (the one with sleek hair). I had to use my Photoshop skills to combine two figures into one to get the outline he wanted.  Overall he was pleased with the shirt.

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Once I had my outline, I traced it in the Silhouette Design Software.  I cut the freezer paper shiny side down on the provided mat.  Then I carefully peeled it away and ironed the outline (also shiny side down) onto my shirt.  Before you paint, you need either cardboard or plastic between your layers of shirt–otherwise you can end up painting both layers.  Next, I painted from the edges into the center.  Oh, and also make sure you wash your shirt first.  I didn’t and it is evident by the puckering of the material.

 

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My daughter, Princess Ballerina, wanted Cinderella of course.  This was a little more detailed.  I had to iron on the outline, then place the other elements like hair, dress, face and gloves into the correct spot and iron them down.  It took a long time and I didn’t take pictures of the in-between.  It took several coats of white paint to get a solid line.  I then peeled off the sections.  Looking back upon it, I would have done the eyes a little differently.  IMG_0728

 

 

For my husband I made a “Rebel Mickey” head with tone on tone paint.  He didn’t want anything too flashy, so this worked well for him. Please excuse the stray paper in the finished product below.

 

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Acroboy wanted a Lego Stormtrooper, looking back on this one, I would have either done this in black or reversed the colors so the white stood out more.  Live and learn I guess.

 

 

 

Whirlwind wanted Yoda with a Lightsaber.  I masked Yoda and his saber, then sprayed glow-in-the-dark paint all around the outline.  After it was all done, I used a neon green, glow-in-the-dark puffy paint for his lightsaber.  We’re pretty happy with how it turned out.

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Firstborn, who was a teenager, didn’t want anything too childish.  We saw a version of his choice on Pinterest.  He thought the quote from Tangled was funny so this was his pick.

 

He wore this while we watched his siblings in the Jedi Academy, and Darth Vader gave him a thumbs up for his shirt.  I used both silver and silver glitter paint to paint it.  The silver glitter I used more as a base coat, because I didn’t think Firstborn would appreciate being sparkly.  It had the right effect.

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I also got inspiration for my shirt on Pinterest, only it was a Doctor Who TARDIS swirling through the Time Vortex.  I thought the idea would apply as well to Hyperspace, so I found a picture of the Millennium Falcon and created the “Hyperspace bubble” and proceeded to spray with a glow-in-the-dark paint.  I also used a brush.  You can see the finished product below.

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We had a lot of fun wearing our customized Disney shirts in the park, and since I made them all in larger sizes, some of the kids are still wearing their shirts.  (The ones who have grown the most have passed them down).

I’d love to know what you think.  If I haven’t made any of the instructions clear, feel free to ask in the comments.  Happy Crafting!

 

 

 

 

Throwback Thursday–10/27/13 Autism Hat Tutorial

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For a while now I’ve been contemplating making something that would possibly make my life a little easier.  I’ve had enough meltdowns on outings with my ASD kids to know I wanted to do something to indicate we are an Autism family.  I also wanted it to be an item I could keep in my car or diaper bag and pull out if we had an unplanned excursion.  (Those are the kind that prompt the most meltdowns).

There are great t-shirts out there, but those would be wearable once and then need to be washed.  I would also have to get it back into the bag/car after it was washed. (Which might be a challenge since I’ve forgotten to restock diapers for the baby from time to time).  I also wanted to have whatever I made available for daily use on our vacation to Disney World.

I thought about creating vests out of lightweight material, and I may still do that, but another crafter on the fabric store suggested hats to me.  This made total sense to me since I need to have all the kids pack hats for the Florida sun anyway.  I checked out the store and they both painters caps and plain baseball caps.

I found this awesome puzzle piece flannel in the fabric store.  Multi-colored puzzle pieces are a symbol for Autism, so this was perfect for my needs.

I used my silhouette cameo with a fabric blade and iron-on interfacing.  Flannel is thicker, so I found the canvas setting worked well.  I used a downloaded Mickey head and turned it into a cut file using my silhouette software.  I cut three from the fabric. You can’t really see two cut Mickeys with this photo, but they were there.

To iron on the Mickey head, I needed to support the inside of the ball cap. I first used a wadded up pair of jeans I was repairing.  It didn’t give enough support.  Then I used a folded towel which worked much better.

I looked high and low to find the right scale letters for my hats.  I also bought a fabric paint pen.  The fabric paint pen didn’t give me the look I wanted, and I was lucky enough to find what I needed at Hobby Lobby.  They are JOY brand Baby Monogram Letters and Numbers.  You can find them here.

I laid out the letters first on the hat (which was a bit tricky), then figuring out where the T needed to be more or less centered, I started ironing down letters.  I found it easiest to keep working in one direction with the letters since the iron had heated up the fabric and made the glue on the letters start to warm up a little.

By the way, the dark spot you see above the Mickey head in the picture below?  It was wet there where I had wiped away the fabric paint.  The fabric paint really didn’t work as well, though I don’t have a picture to prove it to you.

The finished blue cap.

For the record, the painters cap really didn’t have enough room to use any letters, so I left it plain.

The white baseball cap with a bit more embellishment.

 

I was overall pleased with the end result.  I had the kids wear the caps to the Disney and instead of glares, I got smiles and patience.  Acroboy wore his cap and sat front and center at Turtle Talk With Crush and he was chosen to talk to Crush.  (Boy!  Was he excited!).  I’m not sure if it was because of the hat or where he had chosen to sit, but he was thrilled none-the-less.

I think the hats also were a blessing when he got himself lost for a few minutes.  He found a parent with kids (like we’ve trained the kids to do), and they were talking to a Cast Member when we located him.  The hat let the Cast Member and kind parent know we had some special needs going on.

The hats of course got dirty, and we lost one of the letters I hadn’t ironed down enough.  When we got home I washed them in a sweater bag (the mesh kind that sometimes they hold nylons and other things too).  I figured if any more letters came off in the wash, they would end up in the bag.

See the clean, but damaged hat?

I then ironed the letters back on to the hat, and they look as good as new!

I’m happy this worked out so well.  I think we’ll be using these for a long time.

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Update July 2017  We’ve definitely used these hats a lot.  The painters cap was lost pretty quickly, but the baseball caps are distinctive enough we’ve been able to find them again when we’ve lost them.  They still help us get more smiles and patience.  The older kids (who are now teenagers) have been testing and pushing themselves and so they rarely have meltdowns in public anymore.  They have also pushed themselves to wait patiently in lines for about 45 minutes, so they don’t really use the hats.  That is huge progress for us.  Acroboy still uses the hats and it’s a good thing.  He is almost six years younger than Lawboy and it is reflected in his behavior.  While he is also pushing himself to do more, he is younger and has lower limits/thresholds than his older siblings.

Preparing Your Child with Aspergers to Face the World (Or at Least College)

Firstborn graduated last year.  He was accepted into a four of the five schools he applied to–all in different states.

He really wanted to go to one of two schools in particular and he made it his goal to get in.  Once he was accepted and made his decision,  we started preparing for his freshman year.  As I look at things, I realize that in reality, we really started to prepare when he was younger.

Laundry–When he turned eight, we taught him how to do his own laundry.  This has not always been a success.  On more than once occasion we had pink or grey “whites”.  He has been doing this for years, and I showed him how to run a top and front loader washer.  It’s taken lots of practice, and he still doesn’t wash his clothes quite as frequently as I’d like, but he does it.  Call it a victory.

Cooking–Through Scouting, our own efforts and his job at a food establishment, he has learned to cook and bake.  Like laundry, his baking endeavors were not always successful.  He once read 2 1/2 cups flour as TWO one-half cups of flour (ie-one cup).  That was an interesting gooey mess that soon adorned the trash can.  He learned to laugh at himself and has a fun story to tell.  In his senior year, I asked him to help with the food preparation more and more–whether it was browning meat or washing and chopping vegetables.  He can do it and I feel confident the boy will not starve.

Time Management–I’ve been coaching him on time management and organization for years.  This is the one area he has really, really struggled with.  It is more an extension of the struggles he has with executive functioning and planning ahead.  We’ve tried planners of different kinds, giant wall calendars for him to put all of his commitments on and the like.  I’ve often coached my children to look at deadlines for everything on a calendar.  Next, set up false deadlines for themselves a few days before the actual deadline.  Break the event up into smaller tasks, Calculate how much time they think they’ll need for each task and work their way backwards in terms of when they need to start the project/test studying.

I often use taking a trip for my example.  I try to really break down all of the variables so the children realize just how much time and preparation it can take.  On a trip, we know when the flight is, we know it takes x amount of time to get to the airport (say an hour).  It takes about a half an hour to park the car, catch a shuttle bus and get to the counter.  I will work like this:  Our flight leaves at 2pm.  We need an hour to get through security, that means 1pm.  We need an hour and a half to get to the airport, park the car and catch the shuttle.  Let’s give ourselves another 1/2 hour buffer in case we hit traffic.  That means we need to leave at 11am.  It generally takes us all 20 minutes to get the bags loaded, use the restroom before we leave and double-check we haven’t missed anything.  We’ll aim for a departure time of 10:30 (to make it easy to remember and to buffer our time).  We like to tidy the house before we leave, and depending on how on top of things we are, that can take an hour or more.  So, we need to have eaten breakfast, dressed, and packed by 9:30 at the latest.  Knowing how we like to sleep, this means we need bags packed before we go to bed, and we need to wake up by 8 or 8:30 (depending on the child).

Side note–We use detailed packing lists I created several years ago.  The older ones know most of what they need, so they use the packing lists more as a reminder.  We start the packing several days before we leave so the children all have time to wash and dry their laundry before it has to be packed into the suitcase.  

In the end, we sent Firstborn off to school with a portable planner he could keep with him at all times, a white board calendar, a file organizer, one five subject notebook (so he only had to keep track of the one notebook),  a meal plan (so he didn’t have to worry about cooking his freshman year), and lots of prayers.

Initially we got lots of text messages.  He was asking for advice on various things.  We often told him it was up to him to decide.  If he was really stuck, we used the approach of telling him, “other people in your place might….” followed by several suggestions.  We then pushed it back upon him to decide if any of the suggestions would work or if he would choose another course of action inspired by the “brainstorming” session.

One problem in particular I handed completely back to him.  I got a text one morning telling me he had overslept and missed breakfast in order to get to class on time.  Two days later I got the same message.  On the third day, he was convinced his alarm clock had broken and wanted me to tell him what to do.  Our conversation, “If your alarm clock is broken, what do you think you should do?”  In the end, he decided to move his alarm clock from his nightstand to his desk.  That solved the problem.  The act of getting up to shut off his clock woke him up enough that he wasn’t shutting it off in his sleep.  He solved this one himself–win!

We also counseled him on not overloading his schedule, and not tackling too many things at once as he adjusted.  Scheduling and executive functioning continued to be a sticking point.  Twice he took tests in the testing center in the late afternoon/evening because he thought he should have extra study time.  In the end, he realized a morning test time when his mind was fresh was better for him.  One of those late evening test times, he thought he knew what time the testing center closed, only to have miscalculated by an hour.  He ended up filling in random bubbles in the hopes he would get a few right and not get a worse score by not completing the test.

Despite our counsel to not sign up for too many classes if he was doing lots of extracurricular activities, Firstborn dived into both.  He pushed himself and got involved in the resident hall student government, played in the level 2 Symphony Orchestra (for non-music major students who are still serious about music), played in the pit orchestra for one of the school musicals, got involved in photography club, and performed lots of service hours in conjunction with one of his classes.  The second semester he took even more classes than first semester.  He came away with mostly B’s and two C’s for the year(one each semester).  He wasn’t happy about the C’s, but I’m counting it as a win in the end, because he realized it is often better to focus on fewer things and do them well, than do many things and not do them so well.

And I have to say it was quite refreshing when he would come home and lecture his siblings on how they were spending their time and the perils of procrastinating.  That’s when I really knew he had internalized the lessons learned.

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Firstborn would normally be working for the summer and preparing for his sophomore year of school.  Instead he is taking an academic deferment so he can serve a mission for our church.  That in itself has been a different process because of his diagnosis.  I will leave that for my next post.

Until then, I hope you are all well and happy.

 

 

 

Throwback Thursday–Prior Post 8/16/10–Catching Up After a Very Difficult Year Pt. 1

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8/16/10

Wow. Been a while since I posted. I had a pretty hard year. A few months after my ectopic pregnancy I got pregnant again and was pretty excited. I was pretty sick, which I took to be good sign–baby must be growing right–right?

I was dealing with thyroid issues and went to an endocrinologist who diagnosed me with transient hyperthyroidism due to pregnancy.

My doctors wanted me to do an ultrasound at 7-8 weeks to make sure the baby was in the right place after they had seen an appropriate rise in hormone levels. I had one and we saw a heartbeat and it was great.

At 12 weeks I had another ultrasound–the screening one they do for chromosomal disorders. I had my blood work drawn too. Our sweet little baby was moving and kicking and had a nice heartbeat. The doctor told me though that the nuchal folds were a little thicker than normal and they might want to do some more tests–depending on how the blood work turned out. I asked how thick was normal. Answer: 4. How thick was our baby’s nuchal folds? Answer: 9.

It was not something I was expecting.

I went over to my friend’s house after my appointment to get my kids. She sat with me as I expressed my fears that the baby would be okay. I called my husband (DH) who was at the time out-of-the-country again. We talked briefly and decided try to not worry until we had the results of the tests.

Long story made shorter, after much prayer we felt at peace. When word came the following week that our baby had a 1 in 10 chance for trisomy 18 and a 1 in 16 for trisomy 21 (Down Syndrome) we were not surprised. It was a time of great emotion.

For those who don’t know trisomy 21 is most commonly referred to as Down Syndrome. The 21st chromosome has three copies instead of the regular two. Trisomy 18 is three versions of the 18th chromosome. There is even one called trisomy 13. The 13th chromosome has an extra copy there. Birth defects and congenital heart problems are not uncommon among with these. I understand a good number of children with Down Syndrome need heart surgery. Not all do, but a good number of them. With trisomy 18, most babies do not live more than one year because of the birth defects they usually suffer from. Trisomy 13 babies are usually delivered C-section and most don’t survive more than a day or two.

The doctors encouraged us to have either an amniocentesis or a CVS procedure. We prayed and talked and felt strongly that we should hold off on any more testing. We already loved our baby and no testing would change that. We did not want to do anything that might pose an additional risk to the baby.

On a brief trip out West, I found out my best friend had the same due date I did. We were both having a bit of a baby bump, so we went maternity shopping together and got some cute things. She was supportive of our decision, and a great strength to me. She herself was worried for her own baby, since she had been spotting.

(Her spotting stopped and she went on to deliver a beautiful baby girl and I couldn’t be happier for her and her husband).

At my 16 week check-up, the doctor talked to me about seeing a high-risk ob/gyn to determine what extra care if any I might need given my chances for something going on with the baby. When he went to listen to the fetal heartbeat, he had a difficult time locating it. He had me move to the ultrasound room. I had a foreboding feeling.

In the next room the tech was looking at the ultrasound, and I could see that there was no swish-swish of the heart beating. I asked, “There’s no heartbeat is there?” She shook her head no.

I lost it.

I utterly lost it.

I don’t think I’ve ever cried so hard in my entire life.

I had prepared myself for what I thought was the worst, that my baby would be born with trisomy 18 and I would only be able to have him or her for a year or so. I didn’t realize that the chances of my baby making it to term were slim as well.

Words really can’t explain how hard this experience was. I can say that my faith in God and in my Savior did make it easier. I believe that families can be eternal families, and I have had enough experiences in my life to know that I need to trust my Heavenly Father and his plan for me. And though my pain was great, the Savior knows exactly how I feel and more, because of what He did for me and all of us.

I received strength to go forward, and I am grateful for all I learned during this experience.

I’ll try to post more tomorrow about our year.

Do me a favor and go hug your loved ones.

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2017–I’ll be posting the next installment of this “Throwback Thursday” in two weeks.

MouseScrappers Design Challenge #33 Blog Train

I’m sorry for the delay in getting this up today.  It’s been a whirlwind week and I’m just catching my breath.

This was this month’s inspiration pallet–we actually started this challenge in May (May the Fourth be with you).

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I’ve been wanting to try my hand at an alphabet, so I played with the Shareware font Star Jedi.  The full alphabet is for challenge participants only. The only way you can get them is to participate in the challenge.  So, check out the next Design Challenge at MouseScrapper’s and give it a try. It’s a lot of fun and you’ll get some great kits! You don’t need to be a designer to enter.

Now for my FREEBIE for you.  I made four pocket cards, two pngs, and a 12×12 background paper (I tried my hand at creating a textured background).

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I hope you enjoy!  You can download them HERE.

The rest of the blog train:

Chef Minnie Mouse: http://lisacampbelldesigns.blogspot.com/
Pooh46: http://bookladydesigns.blogspot.com/
Digidizscrapper: http://123-autism.com  <<<<<  YOU ARE HERE
Romajo: http://romajoscrap.blogspot.nl/
Roxana: http://scrapscardsandmore.blogspot.com/
Cindyrelly: https://cindyrellyblog.wordpress.com/
Scrappin2girls: http://babyjaydensmommy.blogspot.com/

 

Throwback Thursday–Prior Post 3/28/13–Scout Cake Auction

Recently we had a spaghetti dinner fundraiser for our boy scout troop.  It included a cake auction and the boys were asked to donate a cake they had made.  Some of the boys made desserts, but clearly some of the parents helped out as well.

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Pretty sure this guy’s mom helped him out juuuuuust a little, the frosting job is pretty good for a 12-year-old.

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 This is a cinnamon roll cake my oldest boy made.  He found it on Pinterest.  Here is the link to the original recipe.

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I decided to help my second-oldest boy out by making a back-up batch of cupcakes to donate.  My friend who was in charge told me themed items seemed to raise the most money last year, so I decided to try a variation on a fun idea I’d seen on YouTube.  I found red and white polka-dot cupcake liners, and baked dark chocolate cupcakes in them.

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While they cooled, I covered a cut and taped cereal box in aluminum foil.  (Don’t you love my beat-up table?  Someday I’m going to refinish it.)

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Next, I used double-sided tape to wrap a red polka-dot grosgrain  ribbon around the box

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Then I used my Mickey Mouse punch to punch Mickey heads out of black card stock.  I affixed those to the box using the double-sided tape.  (You can really see the glory of the table in this shot.)

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I frosted the cupcakes with a dark chocolate and pushed mini-Oreos in for the ears.  I used plenty of frosting, so I didn’t need any toothpicks.  I left some of them like that, but I also sprinkled crushed Oreos on top as well.

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The finished product. I’m pleased to say they raised $50 for the troop.  We had just enough left over for each family member to get one and they were a hit!